Model consent clauses for rare disease research

Model consent clauses for rare disease research

Abstract Background Rare Disease research has seen tremendous advancements over the last decades, with the development of new technologies, various global collaborative efforts and improved data sharing. To maximize the impact of and to further build on these developments, there is a need for model...

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Bibliographic Details
Main Authors: Minh Thu Nguyen, Jack Goldblatt, Rosario Isasi, Marlene Jagut, Anneliene Hechtelt Jonker, Petra Kaufmann, Laetitia Ouillade, Fruszina Molnar-Gabor, Mahsa Shabani, Eric Sid, Anne Marie Tassé, Durhane Wong-Rieger, Bartha Maria Knoppers, on behalf of the IRDiRC-GA4GH Model Consent Clauses Task Force
Format: Article
Language:English
Published: BMC 2019-08-01
Series:BMC Medical Ethics
Subjects:
Rare diseases
Informed consent
Research ethics
Core consent elements
Consent clauses
Online Access:http://link.springer.com/article/10.1186/s12910-019-0390-x

Internet

http://link.springer.com/article/10.1186/s12910-019-0390-x

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