Navigating health policies and programs in India: exploring opportunities to improve rare disease management and orphan drug research

Navigating health policies and programs in India: exploring opportunities to improve rare disease management and orphan drug research

Abstract Background Rare disease (RD) management and orphan drug development in India face various hurdles regarding the implementation and adoption of comprehensive policies, lack of dedicated regulatory frameworks, and absence of epidemiological data. Current rare disease policy focuses more on st...

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Bibliographic Details
Main Authors: Sangita Mishra, Deepa Bhat, M. P. Venkatesh
Format: Article
Language:English
Published: BMC 2024-11-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Indian rare disease management
Health policies in India
Indian rare disease policy
Indian healthcare programs
Orphan drugs
Online Access:https://doi.org/10.1186/s13023-024-03377-6

Internet

https://doi.org/10.1186/s13023-024-03377-6

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