Development and pilot implementation of Iranian Hemolytic Uremic Syndrome Registry

Development and pilot implementation of Iranian Hemolytic Uremic Syndrome Registry

Abstract Background Patients with Hemolytic Uremic Syndrome (HUS) face late diagnosis and lack of appropriate treatment because of a lack of knowledge and experience in this field. A prerequisite for such knowledge is the development of research infrastructures such as a registry system. Therefore,...

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Bibliographic Details
Main Authors: Mina Lazem, Nakysa Hooman, Abbas Sheikhtaheri
Format: Article
Language:English
Published: BMC 2022-06-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Model
Hemolytic uremic syndrome
Registry
Disease registry
Rare disease
Iran
Online Access:https://doi.org/10.1186/s13023-022-02376-9

Internet

https://doi.org/10.1186/s13023-022-02376-9

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