Lessons from the on-site quality audit of data transmitted to the French cystic fibrosis registry

Lessons from the on-site quality audit of data transmitted to the French cystic fibrosis registry

Abstract Background The French Cystic Fibrosis Registry takes a census of the population of patients and records their annual data transmitted by Cystic Fibrosis Centers (CFCs). Quality of patient data has been a focus in the past years, with the implementation of automated controls before data inte...

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Bibliographic Details
Main Authors: Nadine Pellen, Laëtitia Guéganton, Dominique Pougheon Bertrand, Gilles Rault
Format: Article
Language:English
Published: BMC 2018-02-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Cystic fibrosis
Registry
Quality audit
Measurement recommendations
Online Access:http://link.springer.com/article/10.1186/s13023-017-0750-x

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http://link.springer.com/article/10.1186/s13023-017-0750-x

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