The Burden of Sickle Cell Disease on Children and Their Caregivers: Caregiver Reports of Children’s Health-Related Quality of Life and School Experiences, Caregiver Burden, and Their Association with Frequency of Vaso-Occlusive Crises

The Burden of Sickle Cell Disease on Children and Their Caregivers: Caregiver Reports of Children’s Health-Related Quality of Life and School Experiences, Caregiver Burden, and Their Association with Frequency of Vaso-Occlusive Crises

Andrew Campbell,1 Avery A Rizio,2 Kristen L McCausland,2 Serban Iorga,3 Glorian P Yen,3 Jincy Paulose,3 Soyon Lee3 1Children’s National Hospital, Washington, DC, USA; 2QualityMetric Incorporated LLC, Johnston, RI, USA; 3Novartis Pharmaceuticals Corporation, East Hanover, NJ, USACorrespondence: Avery...

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Bibliographic Details
Main Authors: Campbell A, Rizio AA, McCausland KL, Iorga S, Yen GP, Paulose J, Lee S
Format: Article
Language:English
Published: Dove Medical Press 2023-11-01
Series:Patient Related Outcome Measures
Subjects:
pediatric
child
toddler
well-being
pain crisis
vaso-occlusion
Online Access:https://www.dovepress.com/the-burden-of-sickle-cell-disease-on-children-and-their-caregivers-car-peer-reviewed-fulltext-article-PROM

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https://www.dovepress.com/the-burden-of-sickle-cell-disease-on-children-and-their-caregivers-car-peer-reviewed-fulltext-article-PROM

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