A Germany-wide survey study on the patient journey of patients with hereditary angioedema

A Germany-wide survey study on the patient journey of patients with hereditary angioedema

Abstract Background Hereditary angioedema (HAE) is a rare genetic disease and characterized by clinical features such as paroxysmal, recurrent angioedema of the skin, the gastrointestinal tract, and the upper airways. Swelling of the skin occurs primarily in the face, extremities and genitals. Gastr...

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Bibliographic Details
Main Authors: Markus Magerl, Holger Gothe, Simon Krupka, Anja Lachmann, Christoph Ohlmeier
Format: Article
Language:English
Published: BMC 2020-08-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Hereditary angioedema
Diagnostic delay
Germany
Rare disease
Survey
Online Access:http://link.springer.com/article/10.1186/s13023-020-01506-5

Internet

http://link.springer.com/article/10.1186/s13023-020-01506-5

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