Consensus recommendations on holistic care in hereditary ATTR amyloidosis: an international Delphi survey of patient advocates and multidisciplinary healthcare professionals

Consensus recommendations on holistic care in hereditary ATTR amyloidosis: an international Delphi survey of patient advocates and multidisciplinary healthcare professionals

Background Hereditary transthyretin-mediated amyloidosis is a rare, progressive and potentially life-limiting multisystem disease, affecting every aspect of a patient’s life.Objectives This online international Delphi survey aimed to evolve clinical−patient-led practical guidance, to inspire and enc...

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Bibliographic Details
Main Authors: Laura Obici, Joanne Ablett, Teresa Coelho, Thirusha Lane, Isabel Conceicao, Rosaline Callaghan, Catilena Bibiloni, Teofila Bueser, Francesca Dongiglio, Agnès Farrugia, Fabian Knebel, Lars-Ove Larsson, Agnès Morier, Vincent Nicholas
Format: Article
Language:English
Published: BMJ Publishing Group 2023-09-01
Series:BMJ Open
Online Access:https://bmjopen.bmj.com/content/13/9/e073130.full

Internet

https://bmjopen.bmj.com/content/13/9/e073130.full

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