Caregivers’ View of Socio-Medical Care in the Terminal Phase of Amyotrophic Lateral Sclerosis—How Can We Improve Holistic Care in ALS?

Caregivers’ View of Socio-Medical Care in the Terminal Phase of Amyotrophic Lateral Sclerosis—How Can We Improve Holistic Care in ALS?

Multidimensional socio-medical care with an early integration of palliative principles is strongly recommended in amyotrophic lateral sclerosis (ALS), but provided inconsistently. We conducted telephone interviews with 49 former caregivers of deceased ALS patients to examine their experience of care...

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Bibliographic Details
Main Authors: Katharina Linse, Elisa Aust, René Günther, Andreas Hermann
Format: Article
Language:English
Published: MDPI AG 2022-01-01
Series:Journal of Clinical Medicine
Subjects:
amyotrophic lateral sclerosis
end-of-life care
palliative care
caregiver burden
informal caregivers
Online Access:https://www.mdpi.com/2077-0383/11/1/254

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https://www.mdpi.com/2077-0383/11/1/254

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