Assessing gastro-intestinal related quality of life in cystic fibrosis: Validation of PedsQL GI in children and their parents.

Assessing gastro-intestinal related quality of life in cystic fibrosis: Validation of PedsQL GI in children and their parents.

<h4>Background</h4>Most patients with cystic fibrosis (CF) suffer from pancreatic insufficiency, leading to fat malabsorption, malnutrition and abdominal discomfort. Until recently, no specific tool was available for assessing gastro-intestinal related quality of life (GI QOL) in patient...

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Main Authors: Mieke Boon, Ine Claes, Trudy Havermans, Victoria Fornés-Ferrer, Joaquim Calvo-Lerma, Inês Asseiceira, Anna Bulfamante, María Garriga, Etna Masip, Sandra Woodcock, Sylvia Walet, Celeste Barreto, Carla Colombo, Paula Crespo, Els Van der Wiel, Jessie Hulst, Sandra Martinez-Barona, Rita Nobili, Luisa Pereira, Mar Ruperto, Saioa Vicente, Kris De Boeck, Carmen Ribes-Koninckx, MyCyFAPP consortium
Format: Article
Language:English
Published: Public Library of Science (PLoS) 2019-01-01
Series:PLoS ONE
Online Access:https://doi.org/10.1371/journal.pone.0225004

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https://doi.org/10.1371/journal.pone.0225004

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