Assessing the impact of grief on quality of life, work productivity, and health outcomes for parents bereaved from SMA: A study protocol

Abstract Background U.S. cost-effectiveness recommendations suggest that analyses should include all costs and effects relevant to the decision problem [1]. However, in many diseases, including spinal muscular atrophy (SMA), few studies have evaluated bereaved family outcomes after a child has died,...

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Bibliographic Details
Main Authors: Abigail G. Riley, Christina M. Mulé, Debra Lerner, Lisa Belter, Colleen McCarthy O’Toole, Stacey Kowal, David Fox, Sheila Shapouri, Tamara Vesel, Tara A. Lavelle
Format: Article
Language:English
Published: BMC 2023-08-01
Series:Cost Effectiveness and Resource Allocation
Subjects:
Online Access:https://doi.org/10.1186/s12962-023-00465-5