Hearing parents' voices: A priority-setting workshop to inform a suite of psychological resources for parents of children with rare genetic epilepsies

Hearing parents' voices: A priority-setting workshop to inform a suite of psychological resources for parents of children with rare genetic epilepsies

Objective: To understand parents' of children with developmental and epileptic encephalopathies needs and preferences for psychological resources. Methods: Using a person-based approach, a multidisciplinary panel of clinician and researchers (n = 9) hosted a priority-setting workshop to 1) unde...

Full description

Bibliographic Details
Main Authors: Suzanne M. Nevin, Claire E. Wakefield, Ann Dadich, Fleur LeMarne, Rebecca Macintosh, Erin Beavis, Rani Sachdev, Ann Bye, Kenneth Nunn, Elizabeth E. Palmer
Format: Article
Language:English
Published: Elsevier 2022-12-01
Series:PEC Innovation
Subjects:
Person-based
Qualitative research
Codesign
Positive psychology
Parent mental health
Online Access:http://www.sciencedirect.com/science/article/pii/S2772628221000145

Internet

http://www.sciencedirect.com/science/article/pii/S2772628221000145

Similar Items