The International LAM Registry: A Component of an Innovative Web-Based Clinician, Researcher, and Patient-Driven Rare Disease Research Platform

The International LAM Registry: A Component of an Innovative Web-Based Clinician, Researcher, and Patient-Driven Rare Disease Research Platform

Background: A relative inability to capture a sufficiently large patient population in any one geographic location has traditionally limited research into rare diseases. Methods and Results: Clinicians interested in the rare disease lymphangioleiomyomatosis (LAM) have worked with the LAM Treatmen...

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Bibliographic Details
Main Authors: Nurok, Michael, Eslick, Ian Scott, Carvalho, Carlos R. R., Costabel, Ulrich, D'Armiento, Jeanine, Glanville, Allan R., Harari, Sergio, Henske, Elizabeth P., Inoue, Yoshikazu, Johnson, Simon R., Lacronique, Jacques, Lazor, Romain, Moss, Joel, Ruoss, Stephen J., Ryu, Jay H., Seyama, Kuniaki, Watz, Henrik, Xu, Kai–Feng, Hohmann, Elizabeth L., Moss, Frank
Other Authors: Massachusetts Institute of Technology. Media Laboratory
Format: Article
Language:en_US
Published: Mary Ann Liebert, Inc. 2011
Online Access:http://hdl.handle.net/1721.1/62556

Internet

http://hdl.handle.net/1721.1/62556

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