Disclosing pathogenic genetic variants to research participants: Quantifying an emerging ethical responsibility

There is an emerging consensus that when investigators obtain genomic data from research participants, they may incur an ethical responsibility to inform at-risk individuals about clinically significant variants discovered during the course of their research. With whole-exome sequencing becoming com...

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Bibliographic Details
Main Authors: Cassa, Christopher A., Savage, Sarah K., Taylor, Patrick L., Green, Robert C., McGuire, Amy L., Mandl, Kenneth D.
Other Authors: Harvard University--MIT Division of Health Sciences and Technology
Format: Article
Language:en_US
Published: Cold Spring Harbor Laboratory Press 2013
Online Access:http://hdl.handle.net/1721.1/76767