Disclosing pathogenic genetic variants to research participants: Quantifying an emerging ethical responsibility
There is an emerging consensus that when investigators obtain genomic data from research participants, they may incur an ethical responsibility to inform at-risk individuals about clinically significant variants discovered during the course of their research. With whole-exome sequencing becoming com...
Main Authors: | , , , , , |
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Other Authors: | |
Format: | Article |
Language: | en_US |
Published: |
Cold Spring Harbor Laboratory Press
2013
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Online Access: | http://hdl.handle.net/1721.1/76767 |