Enhancing equitable access to rare disease diagnosis and treatment around the world: a review of evidence, policies, and challenges

This document provides a comprehensive summary of evidence on the current situation of rare diseases (RDs) globally and regionally, including conditions, practices, policies, and regulations, as well as the challenges and barriers faced by RD patients, their families, and caregivers. The document bu...

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Bibliographic Details
Main Authors: Adachi, Takeya, El-Hattab, Ayman W., Jain, Ritu, Nogales Crespo, Katya A., Quirland Lazo, Camila I., Scarpa, Maurizio, Summar, Marshall, Wattanasirichaigoon, Duangrurdee
Other Authors: School of Humanities
Format: Journal Article
Language:English
Published: 2023
Subjects:
Online Access:https://hdl.handle.net/10356/169907