Using the RUDY study platform to capture quality of life of adults with rare diseases of the bone

Using the RUDY study platform to capture quality of life of adults with rare diseases of the bone

ग्रंथसूची विवरण
मुख्य लेखकों:	Pinedo Villanueva, R, Javaid, M
स्वरूप:	Conference item
प्रकाशित:	Springer London 2016

समान संसाधन

The RUDY study platform – a novel approach to patient driven research in rare musculoskeletal diseases
द्वारा: Javaid, M, और अन्य
प्रकाशित: (2016)

The RUDY study platform – a novel approach to patient driven research in rare musculoskeletal diseases
द्वारा: M. K. Javaid, और अन्य
प्रकाशित: (2016-11-01)

Physical function in UK adults with osteogenesis imperfecta: a cross-sectional analysis of the RUDY study
द्वारा: Orlando, G, और अन्य
प्रकाशित: (2020)

Valuation of lost productivity for people with osteogenesis imperfecta: preliminary results from the RUDY cohort
द्वारा: Cole, SE, और अन्य
प्रकाशित: (2022)

Valuation of lost productivity for individuals diagnosed with Osteogenesis imperfecta: follow-up findings from the Rudy Cohort Study in the UK
द्वारा: Cole, S, और अन्य
प्रकाशित: (2022)

The RUDY study: a novel approach to patient driven research in rare musculoskeletal diseases
द्वारा: Watts, L, और अन्य
प्रकाशित: (2016)

A longitudinal study of patient-reported outcomes of RUDY registry participants with X-linked hypophosphataemia in the UK
द्वारा: Cole, S, और अन्य
प्रकाशित: (2021)

Rudy ricciotti /
द्वारा: 320842 Ardenne, Paul
प्रकाशित: (2004)

The practice of active patient involvement in rare disease research using ICT: experiences and lessons from the RUDY JAPAN project
द्वारा: Nao Hamakawa, और अन्य
प्रकाशित: (2021-02-01)

The RUDY Study: Using digital technologies to enable a research partnership
द्वारा: Teare, H, और अन्य
प्रकाशित: (2017)

Currículum de Rudy Espinoza
द्वारा: Revista Electrónica Educare
प्रकाशित: (2005-06-01)

Dwelm (Rudie van Rensburg)
द्वारा: Francois Bekker
प्रकाशित: (2023-12-01)

Doolhof (Rudie van Rensburg)
द्वारा: Shawna-Leze Meiring
प्रकाशित: (2023-07-01)

Ys (Rudie van Rensburg)
द्वारा: Neil van Heerden
प्रकाशित: (2019-06-01)

Mindeord over Ingrid Rudie
द्वारा: Lisbet Holtedahl
प्रकाशित: (2022-03-01)

BUILDER OF BRIDGES : The Rudy Cuenca story /
द्वारा: Dalisay, Jose Y., और अन्य
प्रकाशित: (2010)

The Biology and Natural History of Aphaenogaster rudis
द्वारा: David Lubertazzi
प्रकाशित: (2012-01-01)

Kathy Rudy’s Feel-Good Ethics
द्वारा: Gary Steiner
प्रकाशित: (2012-02-01)

Subgroups of adults with X-linked hypophosphataemia: cluster analysis of patient-reported outcome measures of participants in a UK rare diseases cohort
द्वारा: Cole, S, और अन्य
प्रकाशित: (2021)

Reading Bion, Rudi Vermote, Routledge, 2019.
द्वारा: Rui Aragão Oliveira
प्रकाशित: (2020-12-01)

Rudy Ricciotti: “Architecture in the State of Panic Survival”
द्वारा: Georgi Stanishev
प्रकाशित: (2018-08-01)

Quality of life in adults with X-linked hypophosphataemia (XLH): Preservation of emotional well-being despite significant limitations in physical domains
द्वारा: Pinedo-Villanueva, R, और अन्य
प्रकाशित: (2017)

A Wireworm Conoderus rudis (Brown) (Insecta: Coleoptera: Elateridae)
द्वारा: Dakshina R. Seal
प्रकाशित: (2012-01-01)

A Wireworm Conoderus rudis (Brown) (Insecta: Coleoptera: Elateridae)
द्वारा: Dakshina R. Seal
प्रकाशित: (2012-01-01)

A Wireworm Conoderus rudis (Brown) (Insecta: Coleoptera: Elateridae)
द्वारा: Dakshina R. Seal
प्रकाशित: (2012-01-01)

World-antiworlds : Hannes Alfven, translated by Rudy Feichter
द्वारा: 289305 Alfven, Hannes, और अन्य
प्रकाशित: (1966)

RUDIE: Robust approach for underwater digital image enhancement
द्वारा: V.Sidda Reddy, और अन्य
प्रकाशित: (2024-12-01)

Pengaruh Film Rudy Habibie terhadap Nasionalisme Siswa
द्वारा: Nanda Putri
प्रकाशित: (2020-12-01)

Multi-layered settlement Rudi XX (excavations in 1982)
द्वारा: Ivan Vlasenko
प्रकाशित: (2017-12-01)

Imminent fracture risk and mortality differ by index fracture site and bone mineral density
द्वारा: Pinedo-Villanueva, R, और अन्य
प्रकाशित: (2024)

Report for CITE "SEWA Rudi Food Packaging Evaluation in India"
द्वारा: Green, Jennifer, और अन्य
प्रकाशित: (2018)

Victims of Modernity. The Image of Capitalist Modernisation in Jaroslav Rudiš’s Fiction
द्वारा: Adam Zygmunt
प्रकाशित: (2024-03-01)

Rudi Dutschke and György Lukács on the Problems of the Bolshevik Type Socialism
द्वारा: Sviatoslav V. Shachin, और अन्य
प्रकाशित: (2024-03-01)

Rudi Thomsen: Ambition and Confucianism. A Biography of Wang Mang
द्वारा: Jens Østergård Petersen
प्रकाशित: (1991-07-01)

Rudy Van Gelder in Hackensack: Defining the Jazz Sound in the 1950s
द्वारा: Dan Skea
प्रकाशित: (2001-02-01)

SEMIOTICS OF BORDER (ANALYSIS OF BATAS, A FILM OF RUDI SOEDJARWO)
द्वारा: Sumekar Tanjung, और अन्य
प्रकाशित: (2019-08-01)

Valuation of lost productivity of adults with X-linked Hypophosphataemia and Osteogenesis imperfecta
द्वारा: Cole, S, और अन्य
प्रकाशित: (2023)

Survey from CITE "SEWA Rudi Food Packaging Evaluation in India"
द्वारा: Green, Jennifer, और अन्य
प्रकाशित: (2018)

Anatomical and Morphometric Study of the Trachea in Pied Kingfisher Birds ( Ceryle rudis ).
द्वारा: Nabeel Abd Murad Al-Mamoori
प्रकाशित: (2016-12-01)

Complete mitochondrial genome of the Red Keelback (Pseudagkistrodon rudis Boulenger, 1906)
द्वारा: Yi-Nan Zhou, और अन्य
प्रकाशित: (2021-10-01)