Principles and practice in biobank governance

Principles and practice in biobank governance

Rapid technological advances, the establishment of large-scale biobanks, and the exchange of data across international boundaries raise a variety of questions for regulators struggling with the problem of how to govern such stores of information and the processes connected with them. Engaging with t...

Disgrifiad llawn

Manylion Llyfryddiaeth
Prif Awduron:	Kaye, J, Stranger, M
Fformat:	Llyfr
Cyhoeddwyd:	Ashgate Publishing Ltd 2009

Eitemau Tebyg

Governing biobanks: An introduction
gan: Stranger, M, et al.
Cyhoeddwyd: (2009)

Biobanking networks - What are the governance challenges?
gan: Kaye, J
Cyhoeddwyd: (2009)

From single biobanks to international networks: developing e-governance
gan: Kaye, J
Cyhoeddwyd: (2011)

From single biobanks to international networks: developing e-governance.
gan: Kaye, J
Cyhoeddwyd: (2011)

Governing UK Biobank: the importance of ensuring public trust.
gan: Tutton, R, et al.
Cyhoeddwyd: (2004)

Consent and research governance in biobanks: evidence from focus groups with medical researchers.
gan: Whitley, E, et al.
Cyhoeddwyd: (2012)

Biobank Governance: The Cautionary Tale of Taiwan Biobank
gan: Shawn H.E. Harmon, et al.
Cyhoeddwyd: (2018-08-01)

From consent to institutions: designing adaptive governance for genomic biobanks.
gan: O'Doherty, K, et al.
Cyhoeddwyd: (2011)

From consent to institutions: Designing adaptive governance for genomic biobanks
gan: O'Doherty, K, et al.
Cyhoeddwyd: (2011)

Access Governance for Biobanks: The Case of the BioSHaRE-EU Cohorts
gan: Kaye, J, et al.
Cyhoeddwyd: (2016)

Building a foundation for Biobanking: the 2009 OECD Guidelines on Human Biobanks and Genetic Research Databases (HBGRDs)
gan: Kaye, J
Cyhoeddwyd: (2010)

Building a foundation for biobanking: the 2009 OECD guidelines on human biobanks and genetic research databases (HBGRDs).
gan: Kaye, J
Cyhoeddwyd: (2010)

Risk mapping for better governance in biobanking: the case of biobank.cy
gan: Kaya Akyüz, et al.
Cyhoeddwyd: (2024-06-01)

Embedding biobanks as tools for personalised medicine
gan: Kaye, J
Cyhoeddwyd: (2012)

A call for global governance of biobanks
gan: Haidan Chen, et al.

Broad consent in biobanking: Reflections on seemingly insurmountable dilemmas
gan: Caulfield, T, et al.
Cyhoeddwyd: (2009)

Personalized assent for pediatric biobanks
gan: Giesbertz, N, et al.
Cyhoeddwyd: (2016)

Mapping the regulatory space for genetic databases and biobanks in England and wales
gan: Kaye, J, et al.
Cyhoeddwyd: (2008)

Biobanking in everyday clinical practice in psychiatry—The Munich Mental Health Biobank
gan: Janos L. Kalman, et al.
Cyhoeddwyd: (2022-07-01)

Do we need a uniform regulatory system for biobanks across Europe?
gan: Kaye, J
Cyhoeddwyd: (2006)

Principles and practices of good governance : the way forward for Sabah : selected papers on principles and practices of good governance /
gan: Mohd. Yaakub Johari, et al.
Cyhoeddwyd: (2004)

Has the biobank bubble burst? Withstanding the challenges for sustainable biobanking in the digital era
gan: Chalmers, D, et al.
Cyhoeddwyd: (2016)

Equitable participation in biobanks: The risks and benefits of a "Dynamic Consent" approach
gan: Prictor, M, et al.
Cyhoeddwyd: (2018)

Governance through scientism: Taiwan Biobank and public controversy
gan: Wan-Ju Lee, et al.
Cyhoeddwyd: (2022-10-01)

Corporate governance : principles, policies and practices /
gan: Tricker, R. Ian (Robert Ian)
Cyhoeddwyd: (2009)

Corporate Governance : Principles, Policies, and Practices /
gan: Tricker, Bob, author 194903
Cyhoeddwyd: (2015)

Corporate governance in Malaysia : principles and practices /
gan: 173843 Cheah, Foo Seong, et al.
Cyhoeddwyd: (2010)

Digital government : principles and best practices /
gan: Pavlichev, Alexei, et al.
Cyhoeddwyd: (2004)

Equitable Participation in Biobanks: The Risks and Benefits of a “Dynamic Consent” Approach
gan: Megan Prictor, et al.
Cyhoeddwyd: (2018-09-01)

Returning results in biobank research: Global trends and solutions.
gan: De Clercq, E, et al.
Cyhoeddwyd: (2017)

Practice variation across consent templates for biobank research. A survey of German biobanks
gan: Irene eHirschberg, et al.
Cyhoeddwyd: (2013-11-01)

Mad scientists bend the frame of biobank governance in British Columbia
gan: Heather L. Walmsley
Cyhoeddwyd: (2009-01-01)

Promoting good governance : principles, practices and perspectives /
gan: 217304 Agere, Sam, et al.
Cyhoeddwyd: (2000)

Sample, data use and protection in biobanking in Europe: legal issues.
gan: Zika, E, et al.
Cyhoeddwyd: (2008)

Biobanking in forestry practices: towards an agency policy?
gan: Fabien Milanovic, et al.
Cyhoeddwyd: (2018-10-01)

ELSI challenges and strategies of national biobank infrastructures
gan: Budin-Ljøne, I, et al.
Cyhoeddwyd: (2012)

IMID-Biobank: Biobank of immune-mediated inflammatory diseases (IMIDs)
gan: Julià A, et al.
Cyhoeddwyd: (2010-11-01)

The impact of governance principles on sport organisations’ governance practices and performance: A systematic review
gan: Milena M. Parent, et al.
Cyhoeddwyd: (2018-01-01)

The European General Data Protection Regulation: challenges and considerations for iPSC researchers and biobanks
gan: Morrison, M, et al.
Cyhoeddwyd: (2017)

Towards 'Engagement 2.0': Insights from a study of dynamic consent with biobank participants
gan: Teare, H, et al.
Cyhoeddwyd: (2015)