Disclosure of genetics research results after the death of the patient participant: a qualitative study of the impact on relatives.
When a gene mutation is identified in a research study following the death of the study participant, it is not clear whether such information should be made available to relatives. We report here an evaluation of the impact on relatives of being informed of study results that detected pathogenic BRC...
Κύριοι συγγραφείς: | Ormondroyd, E, Moynihan, C, Watson, M, Foster, C, Davolls, S, Ardern-Jones, A, Eeles, R |
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Μορφή: | Journal article |
Γλώσσα: | English |
Έκδοση: |
2007
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Παρόμοια τεκμήρια
Παρόμοια τεκμήρια
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Communicating genetics research results to families: problems arising when the patient participant is deceased.
ανά: Ormondroyd, E, κ.ά.
Έκδοση: (2008) -
Is no news good news? Inconclusive genetic test results in <it>BRCA1 </it>and <it>BRCA2 </it>from patients and professionals' perspectives
ανά: Ardern-Jones Audrey, κ.ά.
Έκδοση: (2010-01-01) -
Disclosure of individual genetic data to research participants: the debate reconsidered.
ανά: Bredenoord, A, κ.ά.
Έκδοση: (2011) -
Developments in Clinical Practice: Follow up Clinic for BRCA Mutation Carriers: a Case Study Highlighting the "Virtual Clinic"
ανά: Ardern-Jones Audrey, κ.ά.
Έκδοση: (2004-02-01) -
Researchers’ perspectives on return of individual genetics results to research participants: a qualitative study
ανά: Erisa Sabakaki Mwaka, κ.ά.
Έκδοση: (2021-01-01)