Sharing data for future research-engaging participants' views about data governance beyond the original project: a DIRECT study

<strong>Purpose</strong> Biomedical data governance strategies should ensure that data are collected, stored, and used ethically and lawfully. However, research participants’ preferences for how data should be governed is least studied. The Diabetes Research on Patient Stratification (DI...

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Bibliographic Details
Main Authors: Shah, N, Coathup, V, Teare, H, Forgie, I, Giordano, G, Hansen, T, Groeneveld, L, Hudson, M, Pearson, E, Ruetten, H, Kaye, J
Format: Journal article
Language:English
Published: Springer Nature 2018