From consent to institutions: Designing adaptive governance for genomic biobanks

From consent to institutions: Designing adaptive governance for genomic biobanks

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Biobanks are increasingly hailed as powerful tools to advance health research. The social and ethical challenges associated with the implementation and operation of biobanks are equally well-documented. One of the proposed solutions to these challenges involves trading off a reduction in the specifi...

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Bibliografiske detaljer
Main Authors:	O'Doherty, K, Burgess, M, Edwards, K, Gallagher, R, Hawkins, A, Kaye, J, McCaffrey, V, Winickoff, D
Format:	Journal article
Sprog:	English
Udgivet:	2011

Lignende værker

From consent to institutions: designing adaptive governance for genomic biobanks.
af: O'Doherty, K, et al.
Udgivet: (2011)

Consent and research governance in biobanks: evidence from focus groups with medical researchers.
af: Whitley, E, et al.
Udgivet: (2012)

Broad consent in biobanking: Reflections on seemingly insurmountable dilemmas
af: Caulfield, T, et al.
Udgivet: (2009)

Biobanks and Informed Consent
af: Gabriella Foe
Udgivet: (2014-03-01)

Equitable Participation in Biobanks: The Risks and Benefits of a “Dynamic Consent” Approach
af: Megan Prictor, et al.
Udgivet: (2018-09-01)

"Who owns your poop?": insights regarding the intersection of human microbiome research and the ELSI aspects of biobanking and related studies
af: O'Doherty Kieran C, et al.
Udgivet: (2011-10-01)

Equitable participation in biobanks: The risks and benefits of a "Dynamic Consent" approach
af: Prictor, M, et al.
Udgivet: (2018)

Governing biobanks: An introduction
af: Stranger, M, et al.
Udgivet: (2009)

Principles and practice in biobank governance
af: Kaye, J, et al.
Udgivet: (2009)

Biobanking networks - What are the governance challenges?
af: Kaye, J
Udgivet: (2009)

Informed consent in genomic research and biobanking: Taking feedback of findings seriously
af: Tindana, P, et al.
Udgivet: (2020)

‘It is an entrustment’: Broad consent for genomic research and biobanks in sub-Saharan Africa
af: Tindana, P, et al.
Udgivet: (2017)

Informed consent in genomic research and biobanking: taking feedback of findings seriously
af: Paulina Tindana, et al.
Udgivet: (2020-01-01)

Consent forms in genomics: the difference between law and practice.
af: Boddington, P, et al.
Udgivet: (2011)

Consent, ethics and genetic biobanks: the case of the Athlome project
af: Rachel Thompson, et al.
Udgivet: (2017-11-01)

Governing UK Biobank: the importance of ensuring public trust.
af: Tutton, R, et al.
Udgivet: (2004)

Towards 'Engagement 2.0': Insights from a study of dynamic consent with biobank participants
af: Teare, H, et al.
Udgivet: (2015)

Developing a simplified consent form for biobanking.
af: Laura M Beskow, et al.
Udgivet: (2010-10-01)

Consent for biobanking: The legal frameworks of countries in the BioSHaRE-EU project.
af: Kaye, J, et al.
Udgivet: (2016)

Consent insufficient for data release
af: Nicol, D, et al.
Udgivet: (2019)

Practice variation across consent templates for biobank research. A survey of German biobanks
af: Irene eHirschberg, et al.
Udgivet: (2013-11-01)

From single biobanks to international networks: developing e-governance
af: Kaye, J
Udgivet: (2011)

From single biobanks to international networks: developing e-governance.
af: Kaye, J
Udgivet: (2011)

Broad consent for biobanks is best – provided it is also deep
af: Rasmus Bjerregaard Mikkelsen, et al.
Udgivet: (2019-10-01)

Desiderata for digital consent in genomic research.
af: Parra-Calderón, CL, et al.
Udgivet: (2018)

Biobank Governance: The Cautionary Tale of Taiwan Biobank
af: Shawn H.E. Harmon, et al.
Udgivet: (2018-08-01)

Developing model biobanking consent language: what matters to prospective participants?
af: Laura M. Beskow, et al.
Udgivet: (2020-05-01)

Formalising Requirements for a Biobank Scenario using a Logic for Consent and Revocation
af: Creese, M
Udgivet: (2011)

Can dynamic consent facilitate the protection of biomedical big data in biobanking in Malaysia?
af: Abdul Aziz, Mohammad Firdaus, et al.
Udgivet: (2019)

Understanding the Public's Reservations about Broad Consent and Study-By-Study Consent for Donations to a Biobank: Results of a National Survey.
af: Raymond Gene De Vries, et al.
Udgivet: (2016-01-01)

Explosives, Genomics, and the Environment
af: Kieran C. O’Doherty, et al.
Udgivet: (2013-03-01)

Risk mapping for better governance in biobanking: the case of biobank.cy
af: Kaya Akyüz, et al.
Udgivet: (2024-06-01)

Access Governance for Biobanks: The Case of the BioSHaRE-EU Cohorts
af: Kaye, J, et al.
Udgivet: (2016)

Formalising Requirements for a Biobank Case Study Using a Logic for Consent and Revocation
af: Agrafiotis, I, et al.
Udgivet: (2012)

Broad consent for biobank research in South Africa - Towards an enabling ethico-legal framework
af: Mantombi Maseme, et al.
Udgivet: (2024-12-01)

Building a foundation for Biobanking: the 2009 OECD Guidelines on Human Biobanks and Genetic Research Databases (HBGRDs)
af: Kaye, J
Udgivet: (2010)

Building a foundation for biobanking: the 2009 OECD guidelines on human biobanks and genetic research databases (HBGRDs).
af: Kaye, J
Udgivet: (2010)

Old as the hills
af: McCaffrey, Robin Henderson, et al.
Udgivet: (2013)

Old as the hills
af: McCaffrey, Robin Henderson, et al.
Udgivet: (2013)

Dragon Harper : a new adventure of Pern /
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