Data-driven sudden cardiac arrest research in Europe: Experts’ perspectives on ethical challenges and governance strategies

Data-driven sudden cardiac arrest research in Europe: Experts’ perspectives on ethical challenges and governance strategies

Background: Observational studies using large-scale databases and biobanks help improve prevention and treatment of sudden cardiac arrest (SCA) but the lack of guidance on data protection issues in this setting may harm patients’ rights and the research enterprise itself. This qualitative study expl...

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Príomhchruthaitheoirí: Marieke A.R. Bak, Jelle C.H. Vroonland, Marieke T. Blom, Domagoj Damjanovic, Dick L. Willems, Hanno L. Tan, M. Corrette Ploem
Formáid: Alt
Teanga:English
Foilsithe / Cruthaithe: Elsevier 2023-09-01
Sraith:Resuscitation Plus
Ábhair:
Research ethics
Data protection
Observational studies
Big data
Biobank
Genetics
Rochtain ar líne:http://www.sciencedirect.com/science/article/pii/S2666520423000577

Ar líne

http://www.sciencedirect.com/science/article/pii/S2666520423000577

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